Authors: Claire Treadgold (Starlight Children's Foundation Australia), Erika Fortunati (Starlight Children's Foundation, AU)Our program creates personalised experiences of fun, joy, and happiness for families with a palliative child, aiming to foster family connections and celebrate the simple joys of childhood during this challenging circumstance. Evaluating the program is of utmost importance to ensure that it meets the needs of the families involved. Equally, due to the program's sensitivity and deeply personal nature, a low-pressure, flexible evaluation approach is necessary.
In our session, we will showcase our response to this need and share our highly engaging, low-burden tools to gather participant feedback that leverages concepts of gamification and accessibility to boost evaluation responses and reduce participant burden. In particular, we will focus on our innovative “activity book”, which evaluates the program through artistic expression. By emphasising creativity and flexibility, our tools aim to enrich the evaluation process and respect the diverse preferences and abilities of the participating families.
The core argument will focus on our innovative evaluation methodology, how it aligns with best practices in the literature, and our key learnings. Key points include the considerations needed for evaluating programs involving palliative children, empowering children and young people through their active involvement in the evaluation process, and how gamification and creativity boost participation and engagement.
Outline of the session:
- Introduction to the palliative care program and the need for flexible, creative, and respectful evaluation methods
- What the literature tells us about evaluation methods for programs involving palliative children and their families
- A presentation of our evaluation protocol
- Case studies illustrating the feedback collected and its impact
Our learnings and their implications for theory and practice
